Wednesday, 24 December 2014
Saturday, 15 November 2014
This morning I woke up with 7.2mmo/l and corrected this. I was happy with this number in general but because my target is 6 I chose to correct this. My correction dose was 0.65 units.
This is another reason to love an insulin pump. The minuscule amounts you can bolus means, in theory, a better control than on Multiple Daily Injections. On injections I wouldn't correct until I went over 10mmol/l.
I think it's important to stop and be thankful for the little things sometimes. Even if by little, I mean a 0.65 unit bolus.
Also. Got the 11 years, no complications from my endo recently. Very refreshing to hear that.
Friday, 19 September 2014
It's been awhile since I felt like writing. I could say that it's due to my current workload which is pretty heavy but really I think it's because my blood sugar levels have been creeping higher and higher. It's not something I want to admit. So, if I wrote about it that would mean actually admitting it. I'm at a point where I can admit it now.
Blood sugar levels aren't something to hide from though. I think I thought if I tested and corrected I wasn't hiding from them. In reality I was, I was ignoring the above average fasting levels and many other types of levels.
My downfall? Stress. Stress, stress, stress. It was sending me through the roof. Things have calmed down a bit at work now so I am feeling more comfortable about trying to get back in control. I have an A1c test in 3 weeks and my yearly appointment with my endo. I'm looking forward to it, if only to see how "bad" my A1c has been (side note, there are no bad numbers, only bad decisions made with numbers).
My mantra, as it always has been is one step at a time.
Thursday, 7 August 2014
|Post Pump and becoming an active participant in my health care!|
I can attribute my better levels to my discovery of the Online Diabetic Community. Diabetes is so isolating that it is damn great to have someone to share it with.
Tuesday, 5 August 2014
Monday, 21 July 2014
Here's mine :)
Friday, 11 July 2014
A while ago I decided I would be a SERIOUS runner. I spent some time researching what I needed to do to become this. I told my boyfriend I that would do a half marathon later in the year.
Annnd about 5 or 6 weeks ago I finally stopped researching and went for a run. I started the Couch 2 5K program and continued with that. I've just done Day 3 of Week 4. Today's run consisted of a 5min warm up walk, 3 min running, 90 sec walking, 5 min running 2min,30 sec walking and 5 min running.
And I did it. Even though I find running very hard and I haven't been for a run in over a week.
I feel amazing!
|These feet and shoes have actually been running!|
Tuesday, 10 June 2014
The days are flying by. I remember the older people in my life always used to say that the days go quicker as you get older. Younger me always thought this was stupid. However, 26 year old me says slow the heck down world.
May was a pretty great month in terms of Diabetic things. I wrote all 7 blog posts for the 2014 Blog Week, I tuned into the Diabetes Hope Conference, My blog got a shout out from Amy over at Diabetes Mine, I got my lowest a1c in 8 years and to top it off, I got renewed funding for my insulin pump consumables. That is a whole bunch of great things!
There's more to come with June too. I'm determined to continue to get amongst the DOC by reading and commenting away on blogs. I'm also starting training for a half marathon... keen eyes may have noticed my exercise log on my blog. It lists my training runs and some data I've done around it. Going to put up a separate post about this my reasons why I want to run a half marathon and how I'm feeling about it.
Feel a little like I'm caught up in whirlwind but I am enjoying it so far!
|Year of the Horse I tell you! Credit to Artist Centauressa|
Tuesday, 3 June 2014
First and foremost I loved the idea behind this conference. From the About page on the website:
"We thought that this lack of hope should change. We thought that someone should take up the mantle of hope and at a minimum, start creating hope by getting people to talk about complications like DPN. By talking about it amongst each other, with members of the medical community and yes, even with the pharmaceutical companies that supply the devices and medications for diabetics, we can share knowledge. And it is our belief that knowledge is the first step towards hope."
Diabetes is relentless, it's unforgiving, it's incurable and sometimes it does truly feel hopeless. Talking about hope and talking about the things about Diabetes that make you feel hopeless was only ever going to be a great thing.
Great range of speakers and topics. They were conversations that I was truly interested in. I missed about half of the first conversation due to timing schedules (I was in bed snoozing... it was 4am!) but I still was immediately interested in it even though it was 4.20am NZ time. The whole complications thing can sometimes weigh on my mind. I'm 10 years in to my diagnosis, if they are going to happen, the time is only coming closer. Also, having just finished Diabetes Blog Week - was great to be able to Karen live in person! :)
As a blogger, the Value of Blogging Chronic Illness immediately jumped out when I first looked at the topics. It was really interesting hearing about the research done into this by Pamela Ressler and it gave me a bit of perspective. I spend so much time wrapped up in my own blog and the Diabetes Online Community that I hadn't given thought to what other chronic illness communities may be out there. I can only assume a lot!
The Doctor/Patient relationship is something that I come across in both a personal and professional way. In my professional life as an Advocate, I know what rights people have when it comes to health care in NZ. I know what quality means and I am find I am speaking up more about this in my personal life and embracing this idea of being an active participant in my health care!
The biggest thing about the participants and their topics is that 99% of them are names I have come across before. They are the celebrities of our online community and I was a bit starstruck. Like so many of my peers, these bloggers are cornerstones of my online community - I read about them, tweet them, see them pop up on TuDiabetes etc. It was really fantastic to tune in and be a passive part of their conversations.
As a kiwi it is so so amazing to have the chance to participate in something like this. I have to admit I get very jealous hearing about the events that are held in the States. So, having the opportunity to get involved in this conference was something I jumped at. I invited a friend for a sleep over so we could both get up earlier in the morning. I organised bacon, eggs, hashbrowns and croissants. And I got the laptop hooked up to our big TV screen - check out the pic I posted on twitter: pic.twitter.com/cQxcQ4e0Er.
I rocked my dressing gown and pajamas for the entirety of it and when it finished I jumped in the shower and headed to work for the day. I wasn't watching intensely for the whole time, I balanced between cooking breakfast, drinking coffee, chatting to my D Friend (thank you for joining me that early!) and watching the goings on. I like that side of it, that I could relax and be in my own environment. I sure did enjoy being in my pajamas! Comfy! That brings me to the only thing I wasn't such a fan of - the timing! It meant an early start of 4.30am for me and I was exhausted by the end of it. But it's a non issue, so much so I am purposely not putting it under a heading. Being in NZ means that timing is always going to be an issue and with something like this I would rather it be on in the early hours of the morning NZ time. The DSMA chats are on at night time in the US (I think?) but 2pm here in NZ so its sometimes hard to participate due to work.
All in all - such a positive experience for me and I can't give enough thanks to the organisers, speakers and every one else behind the scenes. You all rock.
Thursday, 29 May 2014
Click for the My Favorite Things - Sunday 5/18 Link List.
I am well and truly belated with this last post of Diabetes Blog Week 2014. But I have had some spare time to think and reflect on what I enjoyed about.
For me, the biggest thing was the community feel of the week. It has been so amazing to click on the link list for one of the days and have noticed that I am part of a great communal effort. It's been truly fantastic. I've tried to get amongst the community a bit more by leaving blog comments on the posts I've read. This sparked from an idea somewhere in the community about posting comments on every blog post you read. I can't recall the blog I read it on though which is not surprising because I read quite a few.
There's too many posts to name all the ones I've enjoyed but here's a go at a few:
I loved the haiku's from Courtney at Pancreassassin - they definitely gave me a few chuckles.
I loved the rawness of Erin's post about Anger and Diabetes - A lot of what I read resonated with me.
I enjoyed reading this post from Vicki about her double life - Not a lot of people know about my blog either so I also sometimes feel like I'm living this other blog life on the internet...
And there's been lots more and I must say a thank you to all the comments - it is really nice hearing what others think of my blog!
Monday, 19 May 2014
|My experience with a CGM - June 2013|
|Current basal rates! This is the reason why I love my pump - so great to be able to change these.|
|His name is Eddie. Not exactly D Related but belongs to the other half|
|Micro dosing - Another reason I love the pump|
Friday, 16 May 2014
Click for the Diabetes Life Hacks - Friday 5/16 Link List.
It's Friday already! I have had great pleasure in sharing 5 days worth of posts with the DOC :)
I've also made an effort to stop being a lurker and start being a commenter on other blogs, so if you are visiting this blog because I left a comment on yours then welcome!
I'm really looking forward to reading some of the life hacks that others have but will share one of the biggest ones of mine..
Pump on a belt.
When wearing a dress or any kind of clothing, wear a high waisted belt. Thread the pump tubing out of one of the arm holes of the dress and hook it onto the belt.
I feel like this should be a given but haven't really seen it discussed much or offered as an option in thread etc.
I don't have anything else but am excited to read up!
Thursday, 15 May 2014
Click for the Mantras and More - Thursday 5/15 Link List.
I'm a bit of an introvert but people people people get me through. After about 8-9 years of not having any D Friends in real life I have one now. There's something comforting about knowing if I text her a rant about my blood sugar levels, she'll just get it.
There's also the love of my life who doesn't know what it's like to live with Diabetes but certainly knows what it's like to live with someone who has Diabetes. He's always happy to listen, let me cry on his shoulder or give me a hug.
I also use this blog as a mechanism to get me through. Writing about what's going in my mind helps me to process it, it can sometimes make a diabetes fueled rant clearer.
And lastly I could not get through without the DOC - I don't tend to ask a lot of questions or participate in discussions but I do read read read. Thank you to everyone out there for sharing. It might be that your visitor stats list is low but I hope you take note that there are people out there reading! I am one of them.
And what is my mantra?
One day at a time. And in the times where the days are a struggle? It's one blood sugar level, one injection, one site change.. one at a time. Step by step.
You can do it.
Click for the What Brings Me Down - Wednesday 5/14 Link List.
I could write a book on this topic. It would be my topic of choice if I did write a book about D, something which I would seriously consider in the future.
There is so much to come to terms with when you have T1D. It's overwhelming. The testing, injecting, the carb counting, the supplies, what to carry with you from now on, the testing, the injections etc. Diabetes can be less of a medical condition and more of a constant freaking annoyance. Those things I mentioned are really just the practical side of it. What is it about these things that turn Diabetes into an emotional waterfall as well? I think it's the idea of living with a chronic medical condition. Knowing, and getting used to the fact that this is your forever. There's also something about knowing that everything you do may possibly impact your Diabetes Management. Want to exercise? Have sex? Relax? Have more sex? Yea, they all can affect your Diabetes in some way. OR. They could not. It could be that some of the things you do, don't actually change anything. It could also be that the one piece of exercise you do on Monday, can have a completely different impact when you do it on Tuesday.
I could go on and on. It's relentless. Sometimes you can figure it out. Sometimes you know that you've incorrectly counted the carbs in a meal. Sometimes you don't. Sometimes no matter how much investigation you do you'll never know why you have that wacko blood sugar. Just writing this blog post has made me tired. Living with it is even more tiring.
There's also those wondrous times when the physical impact of Diabetes can cross over into the emotional impacts - those high or low blood sugars that make you snap, cry, yell. The emotional side of Diabetes is very very very real. But why? For me, I've swung between depression, acceptance, a fierce need for independence, a recognition I need help. I'm fiercely independent. There was a time sometime after starting University when I discovered that if I didn't tell people about my Diabetes I wouldn't get all those over the top worry warts all of the time. So I stopped sharing with people. And then it got to be an obsession, going so far out of my way to hide it from people that it was ridiculous. Going to my bedroom in my very own home to test my blood sugar or inject because I didn't feel comfortable doing it in front of my flatmates.
It wasn't a healthy, emotionally stable way to live. What changed? I did for one, my work load got lighter and I really wanted to tighten up my management. So, I started seeing my CDE at the local hospital and we worked on the puzzle of my Diabetes Management. I did some googling and found the DOC. There's definitely a causation between my better controlled blood sugar levels and my discovery of the online community. But I think I was ready to take a leap and change my mind set.
Diabetes will always be relentless but it is a part of me, not some medical condition I have on the side. Once I accepted that it paved the way for better things.
Tuesday, 13 May 2014
Click for the Poetry Tuesday - Tuesday 5/13 Link List.
Monday, 12 May 2014
Click for the Change the World - Monday 5/12 Link List.
Thursday, 8 May 2014
Tuesday, 29 April 2014
I've just woken up to my third day in a row with perfect BSLs. It seems thr change to my correction factor is working like a charm :)
To give some context, the night before these tests I ranged from 8-15mmol/l.
Win! I think my issue now is making sure my carb to insulin factor is right... getting there!
Wednesday, 23 April 2014
In the middle of last month (March) I had an appointment with my CDE. My A1c was 64 - or 8% in the old units. It was actually the lowest it had been in my 8 years with my current District Health Board. I haven't always been so intensive with my management. It was interesting to look back on those results, there was a couple of results that were so cringe worthy that I didn't want to see but for the most part my control has stayed in the 70s for the past 8 years. I hadn't realised that so seeing that 64 was even more of a win. What's more, is that I knew I could do better than this. In February the average on my meter was about 12.5 mmol/l, I had a couple of unfortunate experiences where my site or tubing pulled out so I woke up in the 20s with ketones. I was also using teflon cannulas with my Animas Vibe pump and found that on the 2 or 3rd day I would sky rocket in my BSLs and it would take so much insulin to bring them back down. When I switched to metal cannulas, the results were amazing. The March Average on my meter was 8.5 mmol/l - which would equate to about a 53 HbA1c. So at that meeting, my CDE was a bit puzzled at what she could do to bring down the 64 lower, based on a few days worth of records that indicated I was running pretty good averages. I explained that I'd changed cannulas and was certain that the month of February would be artificially putting my Hba1c higher than it was. She was happy with this, I was happy and I left feeling positive and overwhelmingly happy at the pump. We organised I would get an A1c test done in yjr beginning of May and that my CDE would put through the application for continued funding in Mid May.
And now we come to the month of April. The average on my meter is 11.1 mmol/l - which would equate to an Hba1c of 70 or 8 %. To qualify for continued funding I need to show a 10 mmol/l drop to a 63 I was on track for this in March but now? I'm scared. I'm been trying to figure out the reasons for the increased Bsls - I had been extremely busy at work, I had a family bereavement, I thought I might be getting a bladder infection...many things which could contribute. Freaking stress. So I'm scared I'm not going to qualify for funding.
So my plan of attack is:
- Increased exercise
- Recording BSLs and sending them to my CDE
- Healthier eating
It looks easy when I put it like that. I think it's been working though, I tweaked my Insulin Sensitivity factor a couple of days ago and I am noticing lower morning BSLs. I feel a lot better writing this all out and there is another thing that could be helpful to me. I received funding in August last year but didn't actual start on an insulin pump until October, so in theory I haven't actually had 9 months of treatment on a pump. My CDE has said that will be enough to get an extension, so I imagine that's the next step.
It's nerve wracking thinking about all of this and it has been on my mind a lot. Writing it down has been cathartic for me. If there is any one else having trouble with continuing their pump funding I would love to hear from you.
Tuesday, 15 April 2014
More recently, I've been looking into the idea of freezing cooking, food preparation and cooking in general. A few weekends ago I did the following food prep!
I made two meals of Lasagna. One I put in a foil container with the intention of freezing it. The other I put in my regular dish and made it that night. I also froze two portions of Saturday Nights meal and popped them in the freezer. I defrosted one of the portions by putting it in the fridge the night before. Then at work I popped it in the microwave and it was delicious! The other portion I forgot to defrost, so left it out while I was at work, when it came to lunch time I put it on defrost for awhile and then on high but unfortunately there was one bit in the middle that was still cold.
At the beginning of the day I put my Corned Beef in the slow cooker, then did two batches of spicy paprika wedges. I seasoned and put them in the oven for about 25-35 mins. Then I waited for them to cool and I popped them into freezer bags. I made up two chicken dishes, one was a satay chicken and the other honey sesame chicken. I didn't really follow any particular recipe, just took inspiration from 3-4 different ones.
So there you have it!
2 X Lasagna
Corned Beef in slow cooker
Honey Sesame Chicken
Tuesday, 18 March 2014
I started my pump in October and it was and still is a big learning curve. One of my biggest take away lessons? I have a significant dawn phenomenon, between the hours of 2am and 5am I need almost three times the amount of insulin that I need during the day. Targeting that is not possible on MDI. There's still some part of me that says, I could have tried harder on MDI and it would have resulted in better results. But really? I did, I honestly did. The proof is in the pudding as some might say. After 3 months on a pump my A1c is 65 or 8.1%. That one was taken in January of this year. I am due for another one in a couple of weeks and I'm actually looking forward to the test.
My current head space? Pretty good. Feeling comfortable. I am happy that the numbers I am seeing on my meter seem to make sense these days. More often than not, I am not correcting a blood sugar level. I'm waking up in the 6's rather than the 12's. I test my blood sugar now because I want to. I'm interested to know where I'm at rather than just cringing. It's a life long journey but right now I am happy with the speed and direction it is going in.